This week I received an email out of the blue from Melbourne, Australia. It was from a Jesuit priest, Geoff King, who was diagnosed with another rare form of MND last July. He writes beautifully clearly and without self-pity, about his experience of PMA, in particular "flail limb". The technical difference is that different sets of motor neurones are affected, but as he comments the symptoms are not so very different. He has begun a blog which I think is beautiful and helpful, The King's Blog. It's a mixture of matter-of-fact recording of experiences and reflections arising from them. Unlike me, he avoids rambling!Yes, I'm recommending it!
He posted an entry on the 25th headed "Patient Transport" which reflected on the patience people learn from disability - whether those who are disabled or those who surround them. It ends like this:
"I close with a quotation from Tomas Halik, who visited Australia last year, a quotation that means more and more to me as the muscular atrophy progresses. 'Patience with others is love. Patience with oneself is hope. Patience with God is faith.'"
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